"When our son was diagnosed with Duchenne Muscular Dystrophy, we felt the world go quiet in a way we cannot describe. But we refused to stop searching for answers. That journey took us through hospitals, research papers, and international networks — and ultimately to one of the world's most advanced DMD gene therapy trials.
We built Umeed DMD Foundation so that no other family in India has to navigate this alone."
Umeed DMD Foundation was founded by a couple whose son has Duchenne Muscular Dystrophy. Together they fought through one of the most difficult journeys any parent can face — and emerged with knowledge, networks, and a determination to share both.
DMD brought their world to a standstill — and then set them in motion in a new direction.
We are not doctors or researchers. We are parents who have lived this diagnosis — and have found, through years of fighting, that science has far more to offer Indian families than most are ever told.
We are also a growing community. Every person who finds Umeed adds their experience and their voice to everyone who comes after them.
Before founding Umeed DMD Foundation, one of our founders ran a registered NGO for the education of underprivileged children in India — bringing to this new mission a solid understanding of governance, community building, program delivery, and the patience that long-term social work demands.