What we do for families.
Umeed DMD Foundation supports children with Duchenne Muscular Dystrophy and their parents across India. We do this in six ways — beginning from the moment of diagnosis, and continuing for as long as we are needed.
  • Personal guidance
    The day of diagnosis is overwhelming. Every family that reaches us receives a personal response from someone who has lived this journey — helping them understand the diagnosis, the next steps, and what questions to ask their doctor.
  • Navigating the medical system
    Understanding genetic reports, finding the right neurologist, starting steroids correctly, establishing a cardiac monitoring routine — we help families navigate every medical step with clarity and without panic.
  • Financial assistance
    Genetic testing, steroids, physiotherapy sessions, cardiac monitoring, assistive devices — the cumulative cost is significant. We provide financial assistance to families who need it, so that resources are never the reason a child misses essential care.
  • Physiotherapy access
    Regular physiotherapy is one of the most important interventions for a child with DMD. We connect families to trained physiotherapists across India, and provide free video-based guides in Hindi and regional languages for families in smaller towns and villages.
  • Community of families
    Monthly support groups across India — in person and online. A community of families in Hindi and English. Because the most healing thing is speaking with someone who truly understands what you are carrying.
  • Access to advanced care
    Science is advancing for DMD faster than most Indian families are told. When families are ready to explore advanced treatment options and global clinical trials, we share what we know and help them find their way to the right information and the right specialists.