Explore Pages
What we do for families.
Umeed DMD Foundation supports children with Duchenne Muscular Dystrophy and their parents across India. We do this in six ways — beginning from the moment of diagnosis, and continuing for as long as we are needed.
-
Personal guidanceThe day of diagnosis is overwhelming. Every family that reaches us receives a personal response from someone who has lived this journey — helping them understand the diagnosis, the next steps, and what questions to ask their doctor.
-
Navigating the medical systemUnderstanding genetic reports, finding the right neurologist, starting steroids correctly, establishing a cardiac monitoring routine — we help families navigate every medical step with clarity and without panic.
-
Financial assistanceGenetic testing, steroids, physiotherapy sessions, cardiac monitoring, assistive devices — the cumulative cost is significant. We provide financial assistance to families who need it, so that resources are never the reason a child misses essential care.
-
Physiotherapy accessRegular physiotherapy is one of the most important interventions for a child with DMD. We connect families to trained physiotherapists across India, and provide free video-based guides in Hindi and regional languages for families in smaller towns and villages.
-
Community of familiesMonthly support groups across India — in person and online. A community of families in Hindi and English. Because the most healing thing is speaking with someone who truly understands what you are carrying.
-
Access to advanced careScience is advancing for DMD faster than most Indian families are told. When families are ready to explore advanced treatment options and global clinical trials, we share what we know and help them find their way to the right information and the right specialists.
