Umeed DMD Patient Registry.

We are building India's first structured DMD patient registry. By registering, you help us understand the scale and nature of DMD in India, connect families to appropriate clinical trials, and contribute to global DMD research.

All information is held in strict confidence and will never be shared without your explicit written permission. Participation is entirely voluntary.

Family Information

Parent/Guardian Name *

Relationship to child *

Whatsapp Number *

Email Address

City *

State *

Preferred Language for Communication

Child Information

Child's Age *

Year of Diagnosis *

Age at Diagnosis

Ambulatory Status *

Currently on Steroids?

Genetic Information

Genetic Test Done?

Type of Mutation (If known)

Specific Exons Affected (If Known)

Support Needed

What support are you currently looking for?

How did you hear about Umeed DMD Foundation?

Would you like to join our community WhatsApp group?

All information collected is held in strict confidence. It will be used solely to support you and to contribute — with your explicit permission — to India's DMD research landscape. You may withdraw your registration at any time by writing to us.